Quality of life, living with & beyond cancer.
Chris Lewis FRSA, founder of 'Chris's Cancer Community,'' and co-founder of 'Your simPal.'Learn More
Medical Director of the Proton Therapy Centre, PragueLearn More
Swim & Sing, and I am a Laryngectomy 10year SurvivorLearn More
Dental Hygienist, RDH CEB DipDH (RADC) 1992, GDC 4276Learn More
Conference PresidentLearn More
Shrenik Shah from Ahmedabad, IndiaLearn More
Radiotherapy unmasked: motion Capture Pillow shows potential to replace thermoplastic masks in head and neck radiotherapyLearn More
My name is Simon and I’m a salesmanLearn More
Tuesday & Wednesday
6th & 7th November 2018
There are a number of options on accommodation for the conference, The Village Hotel Nottingham are kindly offering a 10% discount with the offer code PR01A, alternatively Little Touches have a choice of accommodation to choose from if your working to a budget.
Please click on either of the below links to book your accommodation.
2017 Conference Highlights
2017 Conference 'What people said'
Chris Lewis FRSA, founder of 'Chris's Cancer Community,'' and co-founder of 'Your simPal.'
Chris is a long term cancer patient who has seen the many gaps in cancer support for survivors. His own experiences have led him to be a ‘disruptor,’ with his outspoken style of public speaking and regular postings to his website.
His work has won him many awards and has led to him being one of the major patient influencers within the cancer sector. Chris is known across the globe for his innovative approach to cancer survivorship, and his efforts to improve communication in the sector.
Working with charities and large healthcare organisations throughout the world, enables him to keep up with the latest trends.
As a co-founder of Your simPal Chris has created an innovative and unique platform to help with economic and isolation issues facing people affected by cancer. This works by giving free call/texts/data and phones where required to help keep people connected during a difficult time in their lives. This service is now active across the UK and will go international soon.
Medical Director of the Proton Therapy Centre, Prague
With a great deal of clinical experience as a radiation oncologist at several institutions, Dr. Jiří Kubeš is a specialist in prostate carcinoma as well as head and neck tumours. He joined the Proton Therapy Centre in 2012 and has become the Medical Director in January 2014. He is an assistant professor at the Charles University and the Institute for postgradual education in medicine.
Swim & Sing, and I am a Laryngectomy 10year Survivor
In 2010 I attended a Laryngectomy conference where one of the speakers gave a presentation regarding ‘Swimming after a Laryngectomy’. I can now swim again which was my favourite sport.
The years passed and in 2014, I attended another Laryngectomy conference and this time there was a very passionate speaker called Dr Thomas Moors who announced to me that he could give me a better voice within 6 weeks and now I am a member of the ‘Shout at Cancer’ Choir and together with the group there have been some fantastic social occasions as well as performances.
I am now able to swim and sing with the best of them and I am very content with my life now, I will share my story at the conference plus share my secrets.
Come to the conference and understand how you too can Swim & Sing.
Born too many years ago in Ayr, Scotland I was treated successfully for throat cancer in 1995. A former teacher I became involved in numerous aspects of patient involvement and advocacy at a local, regional and national level being the founder Chair of the Consumer Liaison Group for the National Cancer Research Institute.
Since 2009 I have been the Associate Director for Patient & Public Involvement and Engagement at the National Institute for Health Research - Clinical Research Network (NIHR CRN) for England.
I have recently been asked to become interim Director of the NIHR Nottingham Biomedical Research Centre which includes the local Bio-resource and a Clinical Research Facility.
Emma is a Macmillan Radiotherapy Information and Support Radiographer at The Nottingham Radiotherapy Centre. After qualifying in 1998 she specialised in information and support in 2011 supporting firstly breast cancer patients then Head and Neck Cancer patients. She has evolved this role to include developing a dedicated AHP combined treatment review clinic and helping this group of patients with rehabilitation post treatment.
In 2013 she developed and now leads the Award-winning Macmillan Nottingham Radiotherapy Late Effects Service which has been a truly humbling experience.
Emma also provides on treatment reviews for breast, prostate and lung patients and is currently doing her dissertation for her MSc.
Offering a holistic approach and helping patients live well with and beyond cancer is Emma’s key focus and area if interest.
In 2016 she was awarded Radiographer of the Year for the Midlands region and other awards include a Quality In Care Award and a Macmillan Excellence Award for developing an Innovative service.
Dental Hygienist, RDH CEB DipDH (RADC) 1992, GDC 4276
Jocelyn started her dental career in the Royal Navy in 1987. She qualified as a dental hygienist at RADC Aldershot in 1992 and was fortunate to have the opportunity to work in many locations in UK and abroad including, Gibraltar, Hong Kong and Hawaii. During her 9 years’ service Jocelyn was fortunate to work with many specialists and gain a lot of experience in many areas of dentistry. Jocelyn moved to Gloucestershire in 1999 and has been part of the lovely team working at Confident Dental and Implant Clinic in Stroud, Gloucestershire since 2007.
Her recent interest in helping cancer patients with their dental care before, during and after treatment has been a journey encouraged by family, friends and patients and expert help from specialists. Jocelyn was invited to present at the BDA annual Conference in Manchester, BSDHT annual conference in Harrogate, Brain Tumour support group and regional hygienists and dental nurse groups. The feedback from patients and professionals has been fantastic.
A proud moment recently is when Macmillan in Gloucestershire incorporated the information in their local mouth care policy.
This area of interest which will never end as treatments improve and more products become available to help these patients and their symptoms.
Julian McGlashan FRCS(Otol.) is a laryngologist and head and neck surgeon at the Queen’s Medical Centre Campus at Nottingham University Hospitals
He specialises in voice and laryngeal disorders and thyroid and head & neck surgery, and he works as a part of a multiprofessional voice disorders device team. His main research interests are in voice measurement, imaging of the vocal folds, the effects of gastric reflux on the upper aerodigestive tract and the singing voice.
He lectures widely in the UK and abroad and is actively involved in teaching on postgraduate courses. He is a past-president of the British Voice Association.
Marty Doyle was diagnosed with Metastatic Squamous Cell Carcinoma with an Occult Primary in August 2004.
Following his treatment, he looked around for support from others who had been through Head and Neck Cancer Treatment and found none in Brisbane. He brought this to the attention of a friend at Cancer Council Queensland and they jokingly said, “Why don’t you start your own Support Group”. So, he did.
Over the last 13 years Marty and a core group of fellow survivors have developed more awareness for Head and Neck Cancer in Brisbane and held Support Group Meetings monthly so that anyone who has just been diagnosed, is going through treatment or is dealing with the many side effects of the treatment can join in a conversation about their experiences in a positive safe environment.
Marty also regularly invites Medical Specialists and Allied Professionals to be part of the meetings, allowing everyone to be part of the conversation and share their experiences.
In 2013 Marty started the Head and Neck Cancer Support Australia Group to bring together all support groups in Australia to develop a common message.
In July 2015 along with Cancer Council Queensland, the Group held its first yearly Head and Neck Cancer Forum for patients and their families, to coincide with the World Head and Neck Cancer Awareness Day.
Marty wrote a book about his own experiences called “Letting Go, how to survive life and keep a smile on your face” and compiled and edited the Swallows Patient Book, Australian Version in 2017.
Shrenik Shah from Ahmedabad, India
Cancer Survivor in 21st year as Laryngectomee (vocal folds removed because of Cancer T IV A from Ahmedabad India & using Electro Larynx as alternative method of speaking since 1997 & sound quality is like Robot with much clear audibility as against TEP valve
Recipients of several Awards for my Fight Against Cancer & for leading fearless "Moxie Life After Cancer & for inspiring countless number of Cancer patients in person & through social media.
I look forward to visiting Nottingham and sharing my story.
Shrenik Shah from Ahmedabad, India
Advances in radiotherapy practice may increase patient discomfort. A key challenge to improve patient comfort is the common use of a thermoplastic mask for patients with head and neck cancers. Patients suffer from discomfort and the claustrophobic effect of the mask, or, as they lose soft tissue due to treatment and gain undesirable movement in the mask.
The aim of this project is to allow safe and comfortable management of patient movement and during radiotherapy treatment. Radiotherapy is an effective treatment for patients with cancer that uses radiation to destroy cancer cells. Patients have to critically remain in stable position during planning and treatment for 10 to 30 minutes. This position is repeated over a course of radiotherapy which lasts 3 to 37 days. The uncomfortable position is difficult to maintain without moving. For head and neck radiotherapy, patients are positioned with their head and shoulders in a prepared plastic mask to remain in the same position. It is difficult to see patients moving in the mask because the radiographers are outside the treatment room. We are proposing to develop and test a novel device that will provide stability and reproducibility, control unwanted movement and improve patient comfort.
A prototype system using a robotic Motion Capture Pillow (MCP) is investigated for proof-of-concept and is pictorially presented for the potential replacement of thermoplastic masks.
My name is Simon and I’m a salesman.
Originally I trained at Rolls-Royce, in Bristol, as an aircraft engineer (Don't worry, nothing I worked on is still flying!) however, life on the factory floor was not for me and I followed my Dad in to sales. A company car, the freedom of the road and an expense account added to the attraction.
For the first 18 months I tried to sell toothbrushes to dental practices for Wisdom - No easy task, especially for a rookie with no sales experience or training. However, with a lot of determination I had some success. Enough for the competition - Oral-B - to decide to poach me, so off I went. (Better car and more money too!)
The big change for me at Oral-B was that they gave me some basic sales training. Albeit only two days in their offices with the senior sales manager, but it helped, a bit.
My real 'light bulb' moment came when I joined KaVo Dental. They had an in-house training program that consisted of an initial two-day basic selling skills course, followed by regular days out on the road with a sales manager to give feedback and coaching. This ensured I developed the skills they gave me in the classroom. A sort of on-the-job CPD, if you like.
They also enhanced my skills, year in-year out, by adding other courses - Advanced selling skills, Negotiation skills, Presentation skills, Train-the-Trainer etc, etc.
From then on, my sales career took off! I was soon promoted to sales manager, then sales director and eventually sent to America to run the KaVo America sales team for 3 years.
It was that training - and I have to thank Nick Gartside of PGP, who carried out the courses that made my career.
Since those days I have run Kerr UK as Managing Director, Kerr Europe as European Sales Director and been Director of Equipment Sales for Henry Schein.
Recently, myself and 2 colleagues built Medenta Finance from zero to £24million per year in Patient Finance sales, not just because we had a good product but because we were able to train our clients - Dental Practice Teams - in how to ‘sell’ treatment plans.
In essence, I have spent over 30 years selling to dental practices. I have trained many sales people and dental teams. I have been in to hundreds of dental practices, all over the world. I understand what goes on in a practice and I understand the difficulties in going from only having to think clinically, under the NHS, to trying to become a service provider and asking for money from patients - It's hard, but it can be done. You just need to become comfortable with conversation. Simple.
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